I am now officially a dementia friend. Dementia Friends is a joint initiative between Alzheimer’s Society and Dementia UK to try and raise awareness of what exactly Dementia is. I duly registered online and turned up at the local library where Josette Simon (a very beautiful and talented actor) was ready to tell us all about how we could help.
I was a little bit nervous I would be asked to befriend someone with dementia. Both my parents lived with the condition and it was a very difficult time for all the family. However Josette had a lively way of describing why ‘there is more to a person than the dementia’.
She explained the five things we should all know about dementia. Firstly it is NOT a natural part of ageing. It is caused by diseases of the brain, the most common of which is Alzheimer’s. Dementia is more than just losing memory, it can affect thinking, communication and undertaking everyday tasks.
However, it is possible to live well with dementia-especially if everyone in society plays their part in being more understanding of those who have it and trying to make people with dementia feel included in their communities.
Josette, being a brilliant actor, had a fabulous way with words. She explained how dementia affects two main parts of the brain-the Hippocampus which is where we store our memories and the Amygdala which is really ‘who we are’.
She compared the Hippocampus to a rather shoddily built bookcase which when dementia strikes rocks back and forth displacing all the books. The books on the top shelves represent the most recent memories and the bottom bookshelf represents childhood memories.
She then compared the Amygdala to an extremely well built and solid oak bookcase which represents the ‘who we are’ bit. That does not change when dementia strikes. She then told a poignant story about someone whose mother was living with Alzheimer’s. Often she would wonder if it was worth visiting because her mother would soon forget her visit.
But once she understood about the ‘bookcase’ she realised that although her mum may have forgotten her visit she she still knew her daughter and what she meant to her. So although her memory might have been going she never forgot her family and the warm feelings they all evoked.